Benefits of being part of a support group for caregivers of children with multiple disabilities: a qualitative study

Authors

DOI:

https://doi.org/10.17843/rpmesp.2024.411.13218

Keywords:

Self-Help Group, Disabled Children, Social Support, Community Nursing, Qualitative Research

Abstract

Objective. To explore the perceived benefits of participating in a support group of caregivers of  children with multiple disabilities. Materials and methods. This was a qualitative stud with a focused ethnographic approach, conducted from October 2022 to February 2023, in which we applied convenience
sampling. We included 20 caregivers of children with multiple disabilities. Information was collected through participant observation, focus groups and semi-structured interviews. Thematic analysis was performed applying Braun and Clark’s proposals. Results. The emerging themes were: social support network: integrating, informing and helping each other; learning space: learning to take care and to take care of oneself; promoting empowerment: identifying and facing access barriers. Conclusions. We found that the support group functions as a social support network, provides information, reduces uncertainty, facilitates coping and resilience after the birth and upbringing of a child with multipledisabilities. It is a space where one learns to care for and take care of oneself and  where empowerment for the defense of the rights of children with disabilities is promoted.

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Published

2024-03-27

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Original Article

How to Cite

1.
Rodríguez-Vélez ME, Cantillo-Medina CP, Perdomo-Romero AY. Benefits of being part of a support group for caregivers of children with multiple disabilities: a qualitative study. Rev Peru Med Exp Salud Publica [Internet]. 2024 Mar. 27 [cited 2024 Apr. 24];41(1):54-61. Available from: https://rpmesp.ins.gob.pe/index.php/rpmesp/article/view/13218

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